Regional Genetics Networks (RGNs), a National Coordinating Center (NCC), and the National Genetics Education and Family Support Center (NGEFSC) developed these resources to increase access to quality genetic services for medically underserved populations. Filter the …
Year: 2022
Midwest Genetics Network YouTube Channel
Training videos developed by the Midwest Genetics Network.
University of Mississippi Pediatric Genetics ECHO
Pediatric genetics training with CEU credit for primary care providers The Pediatric Genetics ECHO aims to improve access to genetic services for children across the state of Mississippi by increasing the knowledge and confidence of primary …
Weitzman Institute ECHO Webinars
A partnership between the Weitzman Institute and the New England Regional Genetics Network (NERGN). Educational offerings include webinars on specific genetic hot topics, as well as reviewing genetics cases during identified Project ECHO sessions. While …
Direct-to-Consumer Genetic Testing FAQ for Healthcare Professionals
The Direct-to-Consumer Genetic Testing (DTC-GT) Frequently Asked Questions (FAQ) resource designed for the general clinician who may see patients requesting guidance on DTC-GT. This FAQ is intended to help healthcare professionals understand the diverse landscape …
Center for Human Genomics and Precision Medicine Patients Page
The University of Wisconsin Center for Human Genomics and Precision Medicine patients page answers frequently asked questions and provides resources for patients and their families.
National Organization for Rare Diseases (NORD) Disease Video Library
The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and patient organizations to develop the videos, which are made …
Genetic Alliance
Resources to assist individuals and their families in understanding family health history, signs/symptoms, and screening/testing options along with their implications, diagnosis, treatment, and long-term follow-up. Information about genetic research and clinical trials.
Genetic Testing Registry (GTR)
The Genetic Testing Registry (GTR®) provides a central location for voluntary submission of genetic test information by providers.
Genetic and Rare Diseases Information Center (GARD)
GARD is a program of the National Center for Advancing Translational Sciences (NCATS) to provide access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish.