There are many programs in Wisconsin that may help families coping with a child’s genetic condition.
Aging and Disability Resource Centers (ADRCs) are service centers that provide a place for the public to get accurate, unbiased information on all aspects of life related to aging or living with a disability.
Wisconsin’s five Children and Youth with Special Health Care Needs Regional Centers are dedicated to supporting families with children and youth with special health care needs and the providers who serve them. The Centers are staffed by specialists who can help get answers, find services and connect you to community resources. Their services are free and private.
Family Care is a comprehensive and flexible long-term care service system, which strives to foster people’s independence and quality of life, while recognizing the need for interdependence and support.
IRIS is a self-directed, long-term care option for elderly people and adults with disabilities where the individual creatively use resources to help achieve the life he/she wants with the support needed.
The goal of the Pathways to Independence Natural Supports project is to discover, support, and disseminate creative and promising approaches for supporting youth with disabilities to participate more fully and naturally in school, work, and community activities.
Wisconsin First Step Program provides information and referral services to assist Wisconsin families and providers working with children and youth with special needs. A 24-hour hotline is available to answer questions and will link families to their regional center for additional resources.
Wisconsin’s early intervention program designed for infants and toddlers under age three with developmental delays and disabilities. The staff and family create an individualized family service plan, which may include services involving: family education, developmental education services, occupational therapy, physical therapy, and others. Each county has a designated agency that is responsible for operating the Birth to Three program.
The Wisconsin Chronic Disease Program (WCDP) offers assistance to Wisconsin residents with chronic renal disease, hemophilia, and adult cystic fibrosis. The program pays health care providers for disease-related services and supplies provided to certified WCDP participants after all other sources of payment have been exhausted.
The Department of Health Services (DHS) in Wisconsin is committed to protecting and promoting the health and safety of the people of Wisconsin. DHS works to assure the health, safety, and well-being of Wisconsin citizens while emphasizing prevention, improve the lives of Wisconsin seniors and people with disabilities, and increase opportunities for children to grow up safe, healthy, and successful in strong families.
Information and referral hotlines for families. Services are free and confidential.
The Wisconsin State Genetics Program strives to make sure Wisconsin families and health care providers are aware of and have access to the genetic services available in the state
The Wisconsin Stillbirth Service Program (WiSSP) was developed to provide families and health professionals of Wisconsin with comprehensive services for the evaluation of stillborn infants. WiSSP provides support information as well as medical information pertaining to stillbirths.