There are many support and advocacy groups in Wisconsin to help those with special healthcare needs, including genetic conditions. The list below is not exhaustive, but it provides a sampling of the groups available in Wisconsin.
Links to Resources
A.N.G.E.L.’s mission is to offer financial and emotional support to each individual child and family with an autism spectrum disorder (ASD) with compassionate guidance, and delivery of therapies or services of that family’s choice.
The Autism Society of Greater Wisconsin (ASGW), the Autism Society of Southeastern Wisconsin (ASSEW) and the Autism Society of South Central Wisconsin (ASC) work together to improve the lives of all affected by autism in Wisconsin. All three affiliates provide support, information, newsletters, directories and referrals. They also provide trainings, social opportunities and educational events. ASGW sponsors an annual conference.
Cerebral Palsy Guide is a national support organization dedicated to educating individuals and families about cerebral palsy. While raising awareness about this movement disorder, our team is also committed to providing informational support for children with CP and their parents and caregivers.
Disability Rights Wisconsin helps people across Wisconsin gain access to services through advocacy and legal expertise. Disability Rights Wisconsin supports people of all ages including people with developmental disabilities, mental illness, people with physical or sensory disabilities and people with traumatic brain injury.
The Down Syndrome Association of Wisconsin (DSAW) is an organization created for individuals and families affected by Down syndrome to offer assistance, create awareness and gain acceptance of Down syndrome throughout our communities.
Epilepsy Foundations in Wisconsin
The Epilepsy Foundations of Wisconsin provide case management, counseling, advocacy, job placement, skills training, camp for children, and other important resources for those affected by seizures disorders.
Epilepsy Foundation Heart of Wisconsin
Epilepsy Foundation Southeast Wisconsin
Epilepsy Foundation Western Wisconsin
Family Voices of Wisconsin is a statewide network of families who have children and youth with special health care needs and/or disabilities and those who work on their behalf. The focus of our work is health care access, coverage and community supports and services for children and youth with disabilities and special health care needs.
Family Support and Resource Center of Dane County provides a catalog of helpful websites and resources for families of children with disabilities.
The mission of the March of Dimes is to improve the health of babies by preventing birth defects, premature birth and infant mortality. March of Dimes carries out this mission through research, community services, education and advocacy to save babies’ lives.
Parent to Parent of Wisconsin provides parent support to parents of children with special needs through a one-to-one connection with another parent who has similar experience and who knows firsthand about the feelings and realities that come with having a child with special needs.
The mission of the Prader-Willi Syndrome Association of Wisconsin’s (PWSA) is to support, educate and advocate for persons with Prader-Willi syndrome, their families and professionals in meeting the challenges of this disability.
WI FACETS is a nonprofit organization serving Wisconsin children and adults with disabilities, their families and those who support them. It was founded in 1995 by parents who believed that parents are the best advocates for their children. WI FACETS operates the a variety of programs to help parents, professionals and others support and enrich the lives of children with disabilities.
The mission of Wisconsin Upside Down is to empower individuals with Down syndrome by providing them, their families, and the community with the best information, advocacy, and support.