These are resources for parents, youth, and other family members who wish to learn more about special healthcare needs, including genetic conditions, and to advocate for change.
PIP is a statewide program in which a group of parents and other caregivers meet together five times during the year to: share their family stories, challenges, joys and triumphs of raising their children.
Easter Seals has services for people with disabilities and special needs to increase independence and overcome obstacles in order to reach personal goals. Services include: camps, respite services, self-employment services, and educational programs.
Kids As Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth.
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.