This is an excellent resource for all who wish to advocate on behalf of individuals with genetic conditions, and for those who wish to be self-advocates. From Genetic Alliance.
Genetic Alliance is the world's leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.
Genetics Home Reference is the National Library of Medicine's web site for consumer information about genetic conditions and the genes or chromosomes related to those conditions.
GARD provides the public with access to current, reliable, and easy to understand information about genetic and rare diseases in English and Spanish.
This site, from Medical Genetics at the University of Kansas Medical Center, contains links to a wealth of resources, including support and advocacy groups and disease-specific information.
Genes and Disease is a collection of articles that discuss genes and the diseases that they cause.
Genes in Life is a place to learn about all the ways genetics is a part of your life.